| Location | Broxburn |
| Age | 1 year, 5 months |
| Cause of Death | Brain Haemorrage |
| Date of Birth | 23/11/2006 |
| Date of Death | 30/04/2008 |
| Visitors | 3,743 since 03/06/2008 |
| Creator |
Kai Peter Tommy Trevor Thomson (my son) was born at home on 23rd November 2006.And he died at home on 30th April 2008.
The day after Kai was born his dad took him to local hospital for routine checks. The dr's picked up a heart murmur. He was rushed to The Queen Mother Hospital in Glasgow, we found out that he had a rare condition called ebstein's anomaly. The condition meant that his pulmonary heart valvewas too narrow and his tricuspid valve was leaking. He also had a small hole in his heart which actually helped to keep him alive.
At 9 days old had an operation to open up the narrow valve, this seemed to make all the difference. Kai quickly recovered and we got to go home 3 days before christmas.
We later discovered that he had glaucoma in both eyes which was treated with drops,and 3 monthly checks under annisthetic. Also his right leg was in plaster for 6 months as his foot needed adjusting. He was going to need surgery on his foot but that got cancelled.
We weren't expecting Kai to need any more heart surgery until he was at least 6 but unfortunatly his leaky valve started to leak alot and Kai was quite often blue. It was decided in September that Kai would need open heart surgery to repair and replace his faulty valves at Yorkhill Hospital in Glasgow.
We got a date for the surgery in January but this was cancelled as Kai had Herpes virus, we got another date for February again this was cancelled as Kai had a cold. 3rd time lucky we got a date for 27th March, the surgery lasted about 6 hours longer than expected but Kai came out of it in one piece which was the main thing. He had been given 2 valve replacements the valves had come from a pig and a cow amazing.
After 9 days in ICU he was moved to HDU then up onto a ward. All was looking good and we could see the exit door a couple of days away.
Things unfortunalty started to change so suddenly, his sats dropped and an echo was done, he had formed a clot around 1 of his valves, he was moved back down to HDU. He was put on a blood thinning drug called t-PA overnight. The next morning was scary, we could only hope that the t-PA had worked and cleared the clot. It had, we were two of the most relieved and happiest parents our wee boy was going to be ok. We were ready to get moved back up onto the ward when the most unimagianable thing happened. Kai was acting very strange, seconds later he started to have a very scary seizure, i couldn't watch. He was rushed down for a CT scan. The news was awful, he'd suffered an inter cranial hemorrhage, we were told he would probably not survive through the night. But he did, and another night after that, he was such a fighter. We were told that there was nothing else they could do for him and it would just be a matter of time, hours, days,weeks,months,no-one knew although they thought that once he was off the ventilator he would only live for hours. Not our boy. He was still alive the next morning, we were stuck in cubicle waiting for our baby boy to die it was the worst thing ever. So we decided that if we could we'd take him home to live out what time he had left around people he loved and in the comfort of his own home.
Tuesday 15th April was the day we brought him home. He survived for 15 days and even had started to make improvements but Dr reckons he'd had another bleed. I reckon that he got his calling on Tuesday 29th at a funeral for his friend Luke. Anyway he stopped breathing on Wednesday 30th April peacefully in my arms with his dad and granny at his side ( the same people who had been present when he was born).
We kept Kai at home with us after his passing which was a great comfort to us. He was taken away on the Friday which was very difficult.
His funeral took place on 6th May, for me this was to be a day to celebrate his amazing life, so we had a party, I'd hired a bouncy castle for kids and it was amazing.
I've just noticed that I've written so much about Kai's medical problem's I've not told you all what an amazing boy he was and alway's will be. From the day he was born we knew we were blessed and lucky to have him. He was very definatly a gift from god. The peom written by my fantastic neighbour descibes him to a t. His toothy wee smile was the first thing everyone noticed as it was always there, unless you were a Dr or a nurse of course and had a stethiscope he despised them but who can blame him.
He was unbelievably brave for all he went through as soon as it was over he'd forgotten about it and was back to showing off his two bottom teeth. We have lot's of video footage of him as I lived everyday with him as though it were my last, I knew from the day I saw him in the incubator at 1 day old he was precious as was our time with him and I didn't want to have any regrets. Anyway having the video footage has been fab, I watch it everyday, his little mannerism's were so funny as were his many faces that he pulled. I am going to miss him terribly as are all those who had the pleasure of meeting The Magic Man ( that's what daddy alway's called him).
ENJOY THE LITTLE THING'S IN LIFE.
FOR ONE DAY YOU WILL
LOOK BACK AND REALIZE THEY WERE
THE BIG THING'S!!!!!!!!!!!
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Happy Birthday Kai xxx
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Happy Birthday In Heaven - by Winnie Lovett
"Happy Birthday Kai "
It's sure to be the best one yet,
Though you left us here behind.
Did you think that we'd forget?
Your cake this year, will surely be,
A beauty to behold.
With the icing made of Silver,
And the candles made of Gold.
Yes, your birthday in Heaven,
Will be such a grand affair.
And I know you'll look so lovely,
With a halo in your hair.
The Angels will come from everywhere,
To sing your birthday song.
And I know they'll be so happy,
That you've joined, God's Happy Throng.
No I can't send a card this year,
Or give a gift so fine.
So I'll just send a special prayer,
To that wonderful Son of yours.
Well tommorrow is going to be your 4th birthday. Can't believe it's been 4 years since I gave birth to you, oh what I would do to get that time back.
I miss you baby boy so much. Hope you like your balloons and present
xxxx
The trees up baby boy, mummy couldn't do it last year but she has found the strength this year. Hope you like it. And what about your reindeer, it's amazing, you guide me well. Only 4 sleeps until we meet Tracy, hope you are able to come through with a Hiya for us that would be the best christmas present ever.
I miss you so much, I know your with me always. Mummy loves you always and forever magic man xxxx
A Birthday In Heaven by Kris Smith
I heard you crying yesterday,
And felt your heart-sent love.
So I’m sending you this message
Now, from Heaven up above.
You’re wondering if I’ll celebrate
My Birthday (way up here).
I know you’re missing me today
I feel your essence near.
God planned a special day for me,
He told me with a wink.
He’d ordered me a special cake
(It’s Angel food, I think).
Balloons will fill the streets for me,
They float up through the clouds.
And we have lots of friends up here
That make us laugh out loud.
There is a Birthday carousel,
Jewelled horses ride the wind,
With music playing, oh so sweet…
The magic never ends.
I’ve made so many friends, you see
We laugh and play and sing.
We ride our bikes and play the fool
And sleep in Angel’s wings.
But we don’t blow out our candles here
Instead, they light the skies.
With love from your little Angel xxx
What kind of place would heaven be with all its streets of gold, if all the souls, that dwell up there like yours and mine, were old? How strange would heaven’s music sound when harps begin to ring, if children were not gathered ‘round to help the angels sing. The children that God sends to us are only just a loan, He knows we need their sunshine to make the house a home. We need the inspiration of a baby’s blessed smile. He doesn’t say they’ve come to stay, just lends them for a while. Sometimes it takes them years to do the work for which they come. Sometimes in just a month or two our Father calls them home. I like to think some souls up there bear not one sinful scar. I love to think of heaven as a place where children are.
xxx
Daddy, please don't look so sad,
Mama please don't cry~
"Cause I am in the arms of Jesus
and He sings me lullabies."
Please, try not to question God,
Don't think he is unkind
Don't think He sent me to you,
and then He changed his mind.
You see, I am a special child,
and I'm needed up above
I'm the special gift you gave Him,
the product of your love.
I'll always be there with you
and watch the sky at night,
Find the brightest star that's gleaming,
That's my halo's brilliant light.
You'll see me in the morning frost,
that mists your window pane.
That's me in the summer showers,
I'll be dancing in the rain.
When you feel a little breeze,
from a gentle wind that blows
That's me, I'll be there,
planting a kiss on your nose.
When you see a child playing,
and your heart feels a little tug,
That's me, I'll be there,
giving your heart a hug.
So Daddy, please don't look so sad,
Mama don't you cry.
I'm in the arms of Jesus
and He sings me lullabies.
SLEEP TIGHT LITTLE ANGEL
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Love always xxxx xxxx
Bed time kisses full of love..❤ ❤ ❤
For a beautiful Angel..❤ ❤ ❤
In heaven above❤ ❤ ❤
Bed time kisses..❤ ❤ ❤
Sent for you..❤ ❤ ❤
Just to say we love you too❤ ❤ ❤
Bed time kisses..❤ ❤ ❤
All wrapped up with love❤ ❤ ❤
For a precious Angel..❤ ❤ ❤
Up above❤ ❤ ❤
Bed time kisses..❤ ❤ ❤
For our Angel we miss..❤ ❤ ❤
Here my Angel..❤ ❤ ❤
Is an extra kiss ❤
♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥ ☆ ♥
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┊ ┊┊ ┊┊ ♥ ☆ ♥
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┊ ┊┊ ┊┊ ★★ ★♥
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┊ ┊┊ ┊┊ ★★ ★♥
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┊ ┊┊ ┊┊ ★★ ★♥
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┊ ┊┊ ┊┊ ★★ ★Bed time kisses♥
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┊ ┊┊ ★For a special Angel♥
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┊ ★We love and miss♥
┊
★Always♥
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